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Programs, Events, & Resources for October 2022

 

Save the Dates for PAC's 2023 MoveIt! Walks!

 

Our annual MoveIt! Walk Charlotte will be Saturday, April 22, 2023 at Symphony Park. For those of you who have attended before you know what a great event it is with live music, yoga, many exhibitors, games, raffle and more. For those of you who haven’t attended, join us next year for a great day of awareness and fun.

 

We are excited to bring a new MoveIt! Walk to Wilmington, NC on Saturday, May 6, 2023 at Longleaf Park!!  We have some great volunteers that will be helping us bring the best Walk to you. It will feature live music, yoga stretching, pharmaceutical and other exhibitors, kids activity area, prize raffle and so much more.

 

 

Nicki A. Engel, JD

Elder Law Attorney

 

Register

Virtual Support Group

 

Date: Wednesday, October 5th at 2:00 PM

 

Topic: Life Care Planning

 

Nicki Applefield Engel joined the Collins Elder Law Group in September of 2021. She has practiced elder law in North Carolina for over 11 years, but she has worked with older adults for much longer. As an attorney focused on elder law from the start, Nicki has worked as a solo practitioner and in a larger firm handling estate and special needs planning, probate and trust administration, guardianships, Medicaid and Veterans benefits, and financial exploitation matters.

 

Click here to learn more about PAC's Virtual Support Group Webinars.

 

 

 

Boris Shklyar, D.O.

Medical Director

Register

Wellness Wednesday

 

Date: Wednesday, October 19th at 2:00 PM

 

Topic: Palliative Care

 

Dr. Shklyar, is a graduate of Temple University and the University of New England College of Osteopathic Medicine. He is Board Certified in Emergency Medicine with over 20 years’ experience at Albert Einstein Medical Center in Philadelphia, Grand Strand Regional Medical Center in Myrtle Beach and currently at Conway Medical Center in Conway. Dr. Shklyar also has seven years as a Hospice & Palliative Care Medical Director. He is married with three children, and has received several awards related to his work over the years.

 

Click here to learn more about PAC's Wellness Wednesday Webinars.

 

If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.

PAC's Free Programs! 

Support for Individuals Living with PD & their Care Partners

 

We have numerous support groups across the Carolinas, if you would like to find out about one near you give us a call at 980-245-2786 and a trained staff member will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.

NEW SUPPORT GROUP ALERT:

 

We are excited to announce that Atrium Health Neurosciences Institute is now hosting a monthly Parkinson's support group! This group is open to patients, families, and friends. 

 

Meeting information: 

This meeting will be held on the 2nd Tuesday of each month from 5:30 PM - 7:00 PM in the lobby of 1010 Edgehill Rd. N Charlotte, NC 28207.

 

For more information contact Katherine Sherry at 704-446-0837 or at katherine.sherry@atriumhealth.org. 

 

Movement Therapy

 

To join one of our in person classes or our virtual Gentle Yoga class, click here to see all locations, dates and times. You’ll also find our recently updated list of regional exercise classes in this same section of our website. 

 

* Disclaimers *

 

As a result of the pandemic, many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.

 

We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.

Local Community Programs

 

Rock Steady Boxing Exercise Class

 

Mondays - Thursdays 1:00-2:15

 

Rock Steady Boxing:

- Is rigorous and intended to extend the perceived capabilities of the participant

- Conditions participant for optimal agility, speed, muscular endurance, accuracy, hand-eye coordination, footwork, and strength

 

Located at: Levine Jewish Community Center, 5007  Providence Rd, Charlotte, NC 28226 

Contact JCC at: https://www.charlottejcc.org/wellness-fitness/rock-steady-boxing/

 

Available National Programs

 
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Dance and Sing for PD

 

Classes are now being held online.

 

To learn more,

click here.

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Rock Steady Boxing Headquarters

 

Offers classes online via YouTube!

 

To learn more, click here.

Pedaling for Parkinson's

 

Live Class Schedule:

 

M/W/F with Tom: 11:30 AM CT via Zoom

 

T/TH/SA with John: 8:00 AM  CT via Zoom

 

To join a class,

click here. 

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Poe for PD

 

Offers online Pilates classes!

 

For more information, click here.

Davis Phinney Foundation

Parkinson’s Exercise Essentials

 

To access the video content,

click here.

Stanford Neurosciences Supportive Care Program Virtual Exercise Classes 

 

To access the exercise class schedule, click here.

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Facebook Live Parkinson's Speech Exercises

 

Monday - Friday, 11:00 AM

To learn more,

click here.

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World Parkinson Coalition

 

For articles, webinars, etc., 

visit worldpdcoalition.org.

Smart Patients

Parkinson's Disease Community

In partnership with

American Parkinson Disease Association (ADPA)

 

For more information,

click here.

 

Parkinson's Community News

 

Expert Voices: Dealing with Parkinson's Disease and Speech Difficulties

In this installment of our “Expert Voices” series, Parkinson’s News Today asked Samantha Elandary to answer some of your questions about Parkinson’s-related speech difficulties.

 

As founder and chief executive officer of Parkinson Voice Project, Elandary has dedicated her career to preserving the voices of individuals with Parkinson’s disease and related neurological conditions. She has specialized in the evaluation and treatment of communication disorders associated with Parkinsonism for more than 20 years.  Elandary believes clinicians need the appropriate clinical skills and compassion to provide quality treatment, but they also must adhere to business practices that promote cost effectiveness and efficiency. Under her leadership, Parkinson Voice Project developed SPEAK OUT! & The LOUD Crowd.

 

Continue Reading On Parkinson's News Today

 

What is apomorphine pump treatment – and how might it support people with Parkinson’s? Denmark-based neurologist Dr. Tove Henriksen shares her experience working with the technology to improve care options for those living with the condition

 

Neurologist Dr. Tove Henriksen became involved in the Parkinson’s community “by chance” and has now been researching ‘advanced’ Parkinson’s for 25 years.

 

Continue Reading on Davis Phinney Foundation for Parkinson's

The Latest on Neuroplasticity and Parkinson's 

 

At-home Gait Monitor May Track Progression, Treatment Response

Continuously monitoring the gait of Parkinson’s disease patients in their homes using a wireless device is feasible and may provide more sensitive measurements of disease progression and treatment response, according to a new study.

The device, which monitors fluctuations in motor function by tracking gait speed, may improve disease monitoring and management in people with Parkinson’s.

 

Continue Reading On Parkinson's News Today

 

Upcoming Events

The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of October.

 

For more information and to register for any of these upcoming sessions, click here.

 

MUSC Health presents: "Introduction to your Social Worker, How can I help you?"

 

Thursday, October 6th  at 12:00 P.M.

 

To register, click here. 

 
 
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Pacific Neuroscience Institute presents:

"Everything Parkinson’s Webinar"

 

Monday, October 3rd at 12:00 P.M.

 

To join, click here. Use the following meeting credentials if prompted:

Webinar ID: 821 8048 1494

 

Topic: Living with and Managing Parkinson's disease Psychosis

 

Tuesday, October 18th at  3:00 P.M EDT.

 

To register for this, click here. 

 

Topic: Deep Brain Stimulation: Is It Right for Me or My Loved One?

 

Thursday, October 20th at 12:00 P.M.

 

Click here to learn more.

 

Duke Health presents: Duke Caregiver Community Event (In-Person)

 

Friday, October 28th at 8:00 A.M.

 

To register for this, click here.

 

 

Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.

Local Studies & Trials

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Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)

 

The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time.

 

You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.

 

If you have any concerns about the study, you can contact:

PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu.

 

Acute Effects of Exercise on Autonomic Function

in Parkinson's Disease (PD)

 

Contacts:

  • Lizzie Gamwell, gamwellhe@appstate.edu
  • Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
 

LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).

 

If you are interested in learning more about Project Euphonia, click here.

 

Please contact project.euphonia@lsvtglobal.com with any questions.

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View the Full Flyer

 

The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete.

 

To access the survey, click here.

 

For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu.

 

Wake Forest Baptist Health is conducting a study of light therapy in patients with Parkinson's Disease to improve sleep.

 

To learn more about this study, click here.

 

For more information, contact Study Coordinator: Carolina Burgos Aguilar at caguilar@wakehealth.edu or 336-713-2603.

 

The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls. 

 

For more information, contact either of the following individuals:

  • Sandra Wilson, Research Coordinator - wilsosan@musc.edu 843-792-4616
  • Lisa Heidelberg, Research Coordinator - heidelbe@musc.edu 843-876-0829 

If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu.

PAC's Toll-Free Resource Line is here to Help!

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Staff Answered Toll-Free Resource Line

  • Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
  • You can call for PD related questions, resources, & referrals.
  • You can learn about PAC's cost-free programs.
  • Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.

For more information, click on the green "LEARN MORE" button.

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How You Can Support PAC

Volunteer with PAC

 

There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.

  • Board Member
  • Committee Member
  • Program Volunteer
  • Event Volunteer

For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.

Make Your Mark on Our Local Parkinson's Community!

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