| Carolina PD Pulse: Programs, Events, & Resources for August 2021. |
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Our Signature Symposium is Back In-Person! |
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We're Back In Person!
To save your seat today, click on the following link: REGISTER, or click on the green REGISTER button below. |
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Join in on this Month's PAC Programs! |
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Guest Speaker Dr. Mark Hirsch, Senior Scientist Atrium Health |
| Virtual Support Group
Our next scheduled Virtual Support Group meeting will be held on Wednesday, August 4th at 2:00 PM! Join the PAC team and guest speaker Dr. Mark Hirsch for a discussion on "The Voice of the Parkinson's Community." During this session, Dr. Hirsch will talk about how to engage people at all stages of PD to improve their own care.
Dr. Hirsch is a Senior Scientist in the Department of Physical Medicine and Rehabilitation at Atrium Health. To sign up, click on the following link: REGISTER, or click on the green REGISTER button below.
If prompted, enter the following information: Meeting ID: 824 1483 9345 | Pass Code: 793980
* Our Virtual Support Group takes place on the first Wednesday of every month, at 2:00 PM. |
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Chef John Eisensmith, Season to Taste,
Durham, NC |
| Virtual Cooking Class Join us for our upcoming session on Wednesday, August 11th at 2:00 PM! Chef John will teach participants how to cook Gazpacho and Pesto!
This is a limited capacity, 3-part series, so reserve your spot today! RSVP for August or September today by calling 980-245-2786. Check our website here for more information!
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If you missed our July Virtual Cooking Class, you missed Gnocchi! Chef John Eisensmith of Season to Taste in Durham, NC walked us through a delicious pasta recipe that had participants excited to come back for more!
We thank our friends at Abbot Pharmaceuticals for sponsoring this program! "It's really good for Parkinson's people because it makes you use your hands." - Virtual Cooking Class Participant |
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Wellness Wednesday Our Wellness Wednesday program will continue on the third Wednesday of every month!
Join us Wednesday, August 18th at 3:30 PM for our upcoming webinar entitled "Self Care for Caregivers!" This session will be led by PAC Volunteer and Wellness Coach Jennifer Youse.
To sign up, click on the following link: REGISTER, or click on the green REGISTER button below.
If prompted, enter the following information: Meeting ID: 829 7209 8667 | Pass Code: 326997 | |
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Dr. Sanjay Iyer, MD
Movement Disorder Specialist, Memory and Movement Charlotte |
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Join Dr. Sanjay Iyer, MD Movement Disorder Specialist, Memory and Movement Charlotte accompanied by Charles Manning and patient advocates Joe and Sarah Possenti on Wednesday, August 25th at 2:00 PM for an educational webinar entitled "Managing Off-Episodes."
To register, click on the following link: REGISTER, or click on the green REGISTER button below. If prompted, enter the following information:
Meeting ID: 837 6797 2678| Pass Code: 697646 |
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If you would like to participate in any of our virtual programs by telephone,
please contact Program Coordinator Quinci at 980-245-2786 for instructions. |
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Parkinson's Community News |
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We are all so grateful for the gradual reopening of movement therapy classes and support groups! The Gentle Yoga program through PAC had great engagement virtually throughout quarantine and we are excited to say that we have a full yoga schedule both virtually and in-person for the new fiscal year.
Stay tuned for our newest class beginning Friday, August 6th, at 1:30PM at the JCC in Charlotte. This class will be free and open to all. |
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We a grateful to our sponsors at Southminster making it possible for us to expand our most popular programs. By clicking the link below you will find the Gentle Yoga schedule, including dates, times, locations, and registration for virtual classes. Learn more here |
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Smart Patients Has a New Website! |
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Smart Patients is an online community for patients and families affected by a variety of illnesses including Parkinson's disease. Here you can learn at your own level about scientific developments related to your condition, share your questions and concerns with other members, and use what you learn in the context of your own life. |
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We believe patients are the most underutilized resource in healthcare. We’ve watched patients become experts in their conditions — and we see that their knowledge improves the care they receive. With the right tools, you and other patients can do the same. Take a look at the new website and conversations! |
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Acupuncture as Add-on Therapy May Further Ease Disease Symptoms |
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People with Parkinson’s disease who combine standard medication with various types of acupuncture treatments may see improvements in their motor function and quality of life, a review study from China suggests.
However, its researchers noted that additional clinical trials are necessary to validate these findings. |
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Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Please check the programs affiliated link for more information. |
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Disclaimers! Many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
We ask that you practice caution when participating in all programs especially exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe location, move at your own pace and preferably with a partner - either with a caregiver or video exercise with a friend! |
| Support Groups
The PAC Virtual Support Group will continue every first Wednesday of the month at 2:00 P.M. Our next Virtual Support Group will be August 4th at 2:00 P.M.
PAC assists 90+ support groups in NC and SC. Click here to view our Support Groups.
If you have questions about a specific group, please contact the Support Group Leader. |
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For those of you in Charlotte who have attended our Dance for Parkinson’s class with Gretchen Jax, click here to see her most recently recorded class. Anyone from anywhere is welcome to join! Dance and Sing for PD classes are now being held online. Check danceforparkinson.org or click here for more information. We will be starting a dance for Parkinson’s class in the coming months. Be on the lookout for information coming soon. |
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| Coordinated Caregiving: A New Support Program for Family Caregivers in North Carolina with Lisa Fletcher and SeniorLink. |
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The Caregiver TLC Research Program offers FREE ONLINE support to caregivers in NC. Caregivers will complete six weekly virtual Zoom sessions led by trained facilitators. This workshop will teach coping skills to deal with stress, depression and burden, and strategies to improve quality of life. |
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THRIVE: Parkinson's Online Community Exercise-Education-Support! Have a Parkinson's Specialist as your coach and guide!! |
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| Facebook Live Parkinson's Speech Exercises |
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Allison Hingley, neurologically-specialized Music Therapist, is offering a new (free) group music therapy program to address vocal quality improvement for people with PD. |
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The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with Parkinson's disease (PD). In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30 to 45 mins of your time. |
| You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.
If you have any concerns about the study, you can contact: PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu |
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LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices). |
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The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete. |
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Volunteer with PAC!
For opportunities to assist our PAC team with projects relating to development, digital marketing and communications, and community surveys, OR to serve as a Board Member, Committee Member, or PAC Ambassador, click on the "Learn More" button below, or contact Associate Director Lauren Tankersly at ltankersly@parkinsonassociation.org.
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Would you like to offer your services or insight in a different way? Share your feedback to help us improve PAC's programs and raise awareness about our organization.
We are looking for community members to complete the survey below and share testimonies on PAC’s behalf. We’re welcoming program participants, care partners, and industry leaders to take just a few minutes to complete the survey below. Also, if you have just a bit more time, we would love to hear a testimony about PAC’s services.
If you or someone you know has been positively impacted by our educational webinars and programs, movement therapy classes, support groups, toll free resource line or even our regular communications, you can submit a written or video testimony to Lauren Tankersly at ltanekrsly@parkinsonassociation.org. We appreciate your time and support! Please consider taking our Programs and Service Survey below. |
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Get Involved, and Make Your Mark! |
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It is our mission to empower individuals and families living in the Carolinas
who are affected by Parkinson’s disease through education, outreach and direct support. Therefore, all programs and services provided by Parkinson Association of the Carolinas (PAC) are at no cost to you. PAC is grateful to our amazing donors and community that makes what we do possible!
To donate to PAC and our mission, click the green "DONATE NOW!" button below, or click the following highlighted link: "DONATE NOW!" |
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Stay Connected with PAC for the Latest News |
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Are you a fan of PAC on Facebook? Do you follow us on Twitter? Stay informed and get the latest PD news and events. Click below on the social media outlets you already use and start getting social with PAC today! Check out our NEW Instagram! @parkinsonscarolinas |
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It is our mission to empower individuals and families living in the Carolinas who are affected by Parkinson’s disease through education, outreach and direct support. Therefore, all programs and services provided by Parkinson Association of the Carolinas (PAC) are at no cost to you.
Donate Now! |
| Call us toll-free 866.903.PARK (7275) Our toll-free resource line is available Monday through Friday during normal business hours.
If we are unavailable at the time of your call, please leave us a message. Call today to speak to a PAC team member! |
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