| Programs, Events, & Resources for January 2023 |
|
| |
Thanks to a grant from Crosland Foundation, we are offering a free new program in 2023: “Yoga Tools for Caregivers.” This will be a group of 12 caregivers who will meet twice a month on Thursdays at 2:00pm. The location is Pilates of Charlotte, 10701 McMullen Creek Parkway 2nd Floor, Charlotte, NC 28226 (the venue is generously donating their space). There will be yoga, meditation, mindfulness and group socialization.
We currently have 6 people enrolled and have 6 spots to fill. If you are interested in participating in this program, please register with Aminta St. Onge at aminta@yogavibez.com. If you have any questions about the program, feel free to reach out to Aminta.
|
|
|
PAC's Virtual Programming |
|
| |
Date: Wednesday, January 4th at 2:00 PM Topic: "Caring for the Caregiver" Speaker: Jennifer Youse, Certified Health Coach
Click here to learn more about PAC's Virtual Support Group Webinars. |
|
|
Date: Wednesday, January 18th at 2:00 PM Topic: "What's Your Food IQ" Speaker: Cynthia Schick, Owner of Chefs for Seniors Charlotte
Click here to learn more about PAC's Wellness Wednesday Webinars. |
| |
|
If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you. |
|
|
**FREE ASSISTIVE DEVICES AVAILABLE FOR PICKUP** |
|
|
These gently used items were donated to PAC for the local Parkinson's community. If you are interested in any of the following items, contact Ke'yana Hatfield at khatfield@parkinsonassociation.org or call our office at (980) 245-2786. |
|
|
- 1 x Upright Rollator - Walker with Foldable Transport Seat
- 2 x Stand Alone Toilet Safety Rail Assist Handles
- 2 x Lumber Support Pillows
|
| - 2 x Lap Trays
- 1 x Quad Base Cane
- 1 x Transfer Bench / Shower Chair
-
1 x Shower Bench Seat
|
|
|
FUNdraising Events for PAC |
|
|
Bad Daddies Fundraising Concert at the Visulite Theater
February 25th, 2023 8:00 PM-11:00 PM 1615 Elizabeth Ave, Charlotte, NC 28204 |
|
|
Save the date for this energetic event! PAC is having a concert to raise money for our mission.
"The Bad Daddies began to work the circuit of backyard birthday parties in South Charlotte. Those initial events evolved into galas, fundraisers, weddings and rehearsal dinners, holiday parties, and now, 15+ years later, 50th birthday parties. They have performed from Charlotte to Nashville and towns across the Southeast. Their musical style is like a massive Shuffle Playlist performed live with sweet harmonies!" Keep an eye out for our email with more information soon. |
|
|
Save the Dates for PAC's 2023 MoveIt! Walks!
Our annual MoveIt! Walk Charlotte will be Saturday, April 22, 2023 at Symphony Park. For those of you who have attended before you know what a great event it is with live music, yoga, many exhibitors, games, raffle and more. For those of you who haven’t attended, join us next year for a great day of awareness and fun. We are excited to bring a new MoveIt! Walk to Wilmington, NC on Saturday, May 6, 2023 at Longleaf Park!! We have some great volunteers that will be helping us bring the best Walk to you. It will feature live music, yoga stretching, pharmaceutical and other exhibitors, kids activity area, prize raffle and so much more. |
|
|
Support for Individuals Living with PD & their Care Partners
We have numerous support groups across the Carolinas. If you would like to find out about one near you give us a call at 980-245-2786 and a trained care advisor will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program. |
|
|
Movement Therapy Exercise
To join one of our in person classes or our virtual Gentle Yoga class, click here to see all locations, dates and times. You’ll also find our recently updated list of regional exercise classes in this same section of our website. **Effective January 2023, all of our Gentle Yoga classes will now be known as Yoga for Parkinson's. |
|
|
* Disclaimers * As a result of the pandemic, many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities still are closed out of an abundance of caution for public safety.
We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor. |
|
|
|
Do you live in or around Mooresville, NC? If so try out our yoga class, no registration required! Yoga for Parkinson's Exercise Class 2nd and 4th Tuesdays at 11:15 A.M. Yoga: - improves functional mobility - promotes better balance - lessens gait disturbances and motor symptoms
Located at: Lake Norman Muay Thai, 107 Commons Drive, Mooresville, NC 28117 For more information, call: (704) 657-1080 | |
|
Available National Programs |
|
|
Dance and Sing for PD Classes are now being held online. To learn more,
click here. |
|
Rock Steady Boxing Headquarters Offers classes online via YouTube! To learn more, click here. |
|
Pedaling for Parkinson's Live Class Schedule: M/W/F with Tom: 11:30 AM CT via Zoom T/TH/SA with John: 8:00 AM CT via Zoom To join a class,
click here. |
|
Poe for PD Offers online Pilates classes! For more information, click here. |
|
|
Davis Phinney Foundation Parkinson’s Exercise Essentials To access the video content,
click here. |
|
Stanford Neurosciences Supportive Care Program Virtual Exercise Classes
To access the exercise class schedule, click here. |
|
Facebook Live Parkinson's Speech Exercises Monday - Friday, 11:00 AM
To learn more,
click here.
|
|
|
| Smart Patients Parkinson's Disease Community In partnership with American Parkinson Disease Association (ADPA) For more information,
click here. |
| |
Parkinson's Community News |
|
|
CST-103 Shows Potential to Safely Aid Cognition in Phase 2 Trial |
|
Treatment with CST-103, CuraSen Therapeutics’ investigational oral molecule, safely led to cognitive improvements in people with Parkinson’s disease or mild cognitive impairment (MCI), according to top-line data from a Phase 2 clinical trial.
By combining the CST-103, which is able to enter the brain, with a molecule called CST-107, the treatment also avoided the known side effects of beta-2 adrenoceptor (B2-AR) agonists, a class of medications to which CST-103 belongs.
Continue Reading On Parkinson's New Today |
|
|
“Exercise and neuroplasticity in persons living with Parkinson’s disease” was the theme of a pioneering paper on mechanisms of brain plasticity in PD published in the European Journal of Physical and Rehabilitation Medicine by Mark A. Hirsch, PhD. and Becky G. Farley, PT, PhD in 2009. The term “neuroplasticity” can be defined as the brain’s wondrous ability to alter its own structure and function in response to changes in the internal and/or external environment, a process believed to occur in humans throughout life.
Continue Reading on World Parkinson Congress |
| Radical Collaboration, Exercise, Neuroplasticity, and Parkinson's Disease |
|
|
How I Track My Biological Cycles With Parkinson’s Disease |
|
I’ve written previously about how Parkinson’s disease (PD) “breaks” the biological clock that regulates our wake-sleep cycle, disrupting our daily routines and sleep. For me, it manifests most acutely during “off periods,” when everything in my body shuts down.
A couple years ago, one reader questioned what could be done to make our bio clocks work better. At that time, I didn’t know. But that response wouldn’t have been very helpful. The broken bio clock and Parkinson’s disease are inseparable.
Continue Reading On Parkinson's News Today
|
|
|
Regional and National Programming |
|
| |
The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of January.
For more information and to register for any of these upcoming sessions, click here.
|
|
|
MUSC Health presents: Caregiver Class Thursday, January 5th at 12:00 P.M.
To register, click here. |
| |
| | Pacific Neuroscience Institute presents: "Everything Parkinson’s Webinar" Monday, January 2nd at 12:00 P.M.
To join, click here. Use the following meeting credentials if prompted: Webinar ID: 821 8048 1494
|
|
|
Topic: Thursday, at 12:00 P.M.
Click here to learn more. |
| |
|
Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details. |
|
|
| Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)
The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time. You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity. If you have any concerns about the study, you can contact:
PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu. |
Acute Effects of Exercise on Autonomic Function in Parkinson's Disease (PD)
Contacts: - Lizzie Gamwell, gamwellhe@appstate.edu
- Dr. Jared Skinner, skinnerjw@appstate.edu if you are interested in participation and/or volunteering.
|
|
|
LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices). If you are interested in learning more about Project Euphonia, click here. Please contact project.euphonia@lsvtglobal.com with any questions. |
| |
|
|
The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete. To access the survey, click here. For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu. |
|
|
The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls.
For more information, contact either of the following individuals:
If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at danger@musc.edu. |
| |
|
|
Wake Forest Baptist Health is conducting a study that studies the effects of a wearable device on Parkinson's disease.
To learn more about this study, click here.
For more information, contact Study Coordinator: Melanie Wilder at mwilder@wakehealth.edu or 336-716-1239. | |
|
Russell Sage is conducting a study regarding dance and movement for individuals with Parkinson’s disease. We aim to gather information regarding the use of rhythmic movement/dance and better understand perceived benefits, barriers, and facilitators to initiation and adherence to a dance program. This survey is for individuals that have been diagnosed with Parkinson's disease. By completing this anonymous survey, you will help researchers to evaluate the utilization and knowledge of dance programs within this community, the perceived benefits of dance, barriers, and facilitators to participation.
You do not need to be a dancer to participate. All individuals with PD are welcome to participate in this survey! |
|
|
|
PAC's Toll-Free Resource Line is here to Help! |
| |
| Staff Answered Toll-Free Resource Line - Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
- You can call for PD related questions, resources, & referrals.
- You can learn about PAC's cost-free programs.
-
Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.
For more information, click on the green "LEARN MORE" button. |
|
|
Support PAC's Cost-Free Programs! |
PAC offers free educational programs to the PD communities in the Carolinas! Consider making a donation so we can keep our programs cost-free to you! |
| |
|
Volunteer with PAC
There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities. - Board Member
- Committee Member
-
Program Volunteer
- Event Volunteer
For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.
|
| Make Your Mark on Our Local Parkinson's Community! |
|
|
Support PAC When You Shop on Amazon! |
|
You shop. Amazon gives.
Consider selecting Parkinson Association of the Carolinas as your nonprofit on AmazonSmile, and Amazon will donate a portion of your purchase to PAC. Click here to get started.
Shop PAC's Amazon Smile Charity List |
|
|
Follow PAC on Social Media! |
| |
|
Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*
*{{Unsubscribe}}* |
| |
|
|
