Programs, Events, & Resources for September 2022
Or visit bit.ly/3cfmbRP for registration.
Have Questions? Contact Ke'yana Hatfield at firstname.lastname@example.org
SEPTEMBER'S VIRTUAL SUPPORT GROUP CANCELED
Due to the upcoming symposium, we have canceled our Virtual Support Group for September. Below you will find information for October's Virtual Support Group.
OTR/L, Owner of Threshold Therapeutic, LLC
Date: Wednesday, September 21st at 2:00 PM
Topic: Home Safety Assessments
Mattie Ablitz graduated from James Madison University with a master’s degree in Occupational Therapy and has 12 years of experience in the field. She is a resident of Matthews, North Carolina along with her husband and two children. Her work experience covers a wide variety of settings, including home health, inpatient rehabilitation, acute care, adult day centers, skilled nursing, and mental health. Mattie specializes in the evaluation and treatment of adults and seniors with special interest in home safety, home modifications, adaptive techniques, adaptive equipment and rehabilitation. She is a certified Falls Prevention Specialist, and is also certified in Kinesiotaping. Mattie is passionate about community engagement, working with families and caregivers, and helping seniors age safely in their homes.
Click here to learn more about PAC's Wellness Wednesday Webinars.
OCTOBER VIRTUAL SUPPORT GROUP
Virtual Support Group
Date: Wednesday, October 5th at 2:00 PM
Topic: Life Care Planning
Nicki Applefield Engel joined the Collins Elder Law Group in September of 2021. She has practiced elder law in North Carolina for over 11 years, but she has worked with older adults for much longer. Nicki earned her J.D. from the West Virginia University College of Law in 2011 and her B.S. in political science from Appalachian State University in 2007. In 2011, Nicki became
licensed to practice law in North Carolina, and in 2013, she became licensed in South Carolina. As an attorney focused on elder law from the start, Nicki has worked as a solo practitioner and in a larger firm handling estate and special needs planning, probate and trust administration, guardianships, Medicaid and Veterans benefits, and financial exploitation matters.
Click here to learn more about PAC's Virtual Support Group.
If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.
Support for Individuals Living with PD & their Care Partners
We have numerous support groups across the Carolinas, if you would like to find out about one near you give us a call at 980-245-2786 and a trained staff member will assist you. Not ready for a support group? We can connect you one on one with a person with Parkinson’s through our Peer to Peer program.
To join one of our in person classes or our virtual Gentle Yoga class, click here to see all locations, dates and times. You’ll also find our recently updated list of regional exercise classes in this same section of our website.
* Disclaimers *
As a result of the pandemic, many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor.
Rock Steady Boxing Exercise Class
Mondays - Thursdays 1:00-2:15
Rock Steady Boxing:
- Is rigorous and intended to extend the perceived capabilities of the participant
- Conditions participant for optimal agility, speed, muscular endurance, accuracy, hand-eye coordination, footwork, and strength
Located at: Levine Jewish Community Center, 5007 Providence Rd, Charlotte, NC 28226
Contact JCC at: https://www.charlottejcc.org/wellness-fitness/rock-steady-boxing/
Available National Programs
Dance and Sing for PD
Classes are now being held online.
To learn more,
Rock Steady Boxing Headquarters
Offers classes online via YouTube!
To learn more, click here.
Pedaling for Parkinson's
Live Class Schedule:
M/W/F with Tom: 11:30 AM CT via Zoom
T/TH/SA with John: 8:00 AM CT via Zoom
To join a class,
Poe for PD
Offers online Pilates classes!
For more information, click here.
Davis Phinney Foundation
Parkinson’s Exercise Essentials
To access the video content,
Stanford Neurosciences Supportive Care Program Virtual Exercise Classes
To access the exercise class schedule, click here.
Facebook Live Parkinson's Speech Exercises
Monday - Friday, 11:00 AM
To learn more,
Parkinson's Disease Community
In partnership with
American Parkinson Disease Association (ADPA)
For more information,
Parkinson's Community News
Group Singing May Be Therapy for Walking Problems, Tremor
A one-hour group singing session significantly eased problems with walking and posture, as well as tremors, in adults with Parkinson’s disease who were on stable medication, a small study reported.
While no significant benefits were seen for speech and facial expression, or for bradykinesia (slowness of movement), patients taking part in singing sessions for many years — the study did not specify how many — showed greater reductions in bradykinesia.
In turn, those with fewer years of singing experienced greater improvements in gait and posture.
Continue Reading On Parkinson's News Today
Do you or a loved one kick, punch, yell or even fall out of bed while sleeping? This condition of acting out dreams, known as REM sleep behavior disorder (RBD), is linked to an increased risk of Parkinson’s disease (PD). Not everyone with RBD gets Parkinson’s. But in some people, RBD is one of the earliest symptoms of PD.
To learn more about Parkinson’s risk if you or a loved one act out dreams, download the free guide.
Acting Out Dreams and Parkinson's Risk
PD & Pollution: Something in the Air
Parkinson’s disease (PD) is believed to be caused by a complex interaction of genetic and environmental factors. There is now mounting evidence that air pollution exposure is an emerging risk factor in the development of PD.
As the world's largest environmental risk factor for disease and premature death, air pollution has already been linked with heart disease, stroke, lung cancer, respiratory diseases and diabetes, as well as neurogenerative diseases such as Alzheimer’s and Autism Spectrum Disorder (Costa, Cole, Dao, Chang, & Garrick, 2019). However, it remains unclear whether environmental exposures such as air pollution increases the risk of developing PD or simply accelerates a disease process that is already present.
Continue Reading On Parkinson's News Today
The American Parkinson’s Disease Association has a variety of educational webinars scheduled throughout the month of August.
For more information and to register for any of these upcoming sessions, click here.
MUSC Health presents: Caregiver Class
Thursday, September 1st at 12:00 PM
To register, click here.
Pacific Neuroscience Institute presents:
"Everything Parkinson’s Webinar"
Monday, September 12th at 12:00 PM
To join, click here. Use the following meeting credentials if prompted:
Webinar ID: 821 8048 1494
Topic: Pelvic Health and Living with Parkinson's
Tuesday, September 20th at 3:00 P.M EDT.
To register for this, click here.
Topic: Finding Your Way: Working through Emotions in Early Years with Parkinson’s
Thursday, September 15th at 12:00 P.M.
Click here to learn more.
Topic: Drug Repurposing for PD - Does It Work?
Tuesday, September 13th at 11:00 A.M. EDT
To register, click here.
Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details.
Effects of Restrictions from COVID-19 on Physical Activity Levels among individuals with Parkinson's disease (PD)
The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time.
You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.
If you have any concerns about the study, you can contact:
PI: Jared W. Skinner at 828-262-2512 or email@example.com.
Acute Effects of Exercise on Autonomic Function
in Parkinson's Disease (PD)
- Lizzie Gamwell, firstname.lastname@example.org
- Dr. Jared Skinner, email@example.com if you are interested in participation and/or volunteering.
LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).
If you are interested in learning more about Project Euphonia, click here.
Please contact firstname.lastname@example.org with any questions.
The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete.
To access the survey, click here.
For questions, contact Kathrin Rothermich at 252-744-2329 or email@example.com.
Wake Forest Baptist Health is conducting a study of light therapy in patients with Parkinson's Disease to improve sleep.
To learn more about this study, click here.
For more information, contact Study Coordinator: Carolina Burgos Aguilar at firstname.lastname@example.org or 336-713-2603.
The MUSC Movement Disorders Program is conducting a clinical trial to evaluate the efficacy and safety of an experimental drug (TAK-071) in Parkinson's Disease or Lewy Body patients with MCI and an elevated risk of falls.
For more information, contact either of the following individuals:
If you are interested in participating in a clinical trial please email the MUSC Movement Disorders Program at email@example.com.
PAC's Toll-Free Resource Line is here to Help!
Staff Answered Toll-Free Resource Line
- Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
- You can call for PD related questions, resources, & referrals.
- You can learn about PAC's cost-free programs.
Call 1-866-903-PARK (7275) or email firstname.lastname@example.org.
For more information, click on the green "LEARN MORE" button.
Support PAC's Cost-Free Programs!
Volunteer with PAC
There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities.
- Board Member
- Committee Member
- Event Volunteer
For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button.
Make Your Mark on Our Local Parkinson's Community!
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