| Programs, Events, & Resources for July 2021. |
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Our Annual Charlotte Symposium is Back In-Person! |
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Join in on this Month's PAC Programs! |
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Dr. Jared Skinner, Assistant Professor, PhD, Applied Physiology and Kinesiology-Biomechanics at Appalachian State University |
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Virtual Support Group
Join us Wednesday, July 7th, at 2:00 P.M. for our virtual support group! This session will be led by guest Dr. Jared Skinner, discussing how exercise impacts non-motor symptoms of Parkinson's disease and research happening at Appalachian State University.
To sign up, click on the following link: REGISTER, or click on the green REGISTER button below. If prompted, enter the following information: Meeting ID: 824 1483 9345 | Pass Code: 793980
* Our Virtual Support Group takes place on the first Wednesday of every month. |
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Chef John Eisensmith, Season to Taste |
| Virtual Cooking Class
Our new Virtual Cooking Class Series kicks off this month, sponsored by Abbott Pharmaceuticals and led by Chef John Eisensmith with Season to Taste in Durham, NC!
Join us on Wednesday, July 14th at 2:00 P.M. for our first webinar!
This is a limited capacity, 3-part series, so reserve your spot today! For more information or to sign up, check the flyer attached here or check our website here.
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| Wellness Wednesday
Our Wellness Wednesday program will continue on the third Wednesday of every month!
Join us Wednesday, July 21st at 3:30 P.M. for our upcoming webinar! This session will be led by PAC's Program Coordinator, Quinci Christian and guest to be announced.
To sign up, click on the following link: REGISTER, or click on the green REGISTER button below.
If prompted, enter the following information: Meeting ID: 829 7209 8667 | Pass Code: 326997 |
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Vigeana Sanon, Pharm.D., Rph |
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In case you missed the June session at 2PM we hope you can join Vigeana Sanon, Pharm.D., Rph and Dr. Shannon R. Blume on Thursday, July 15th at 6:00 P.M. for an educational webinar entitled, "The Introduction to Parkinson’s Disease."
To register, click on the following link: REGISTER, or click on the green REGISTER button below. If prompted, enter the Meeting ID: 870 4788 6668| Pass Code: 030237 |
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If you would like to participate in any of our virtual programs by telephone,
please contact Program Coordinator Quinci at 980-245-2786 for instructions. |
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Parkinson's Community News |
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“Parkinson's Shmarkinsons:" A New Parkinson's Image |
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Bonnie Clancy is a PWA: Person with Attitude. She’s also a PWP, but that’s backseat to her being a PWA! Bonnie’s modus operandi in life has always been to make things happen. She was a private trainer at an exercise studio she owned for 10 years. Health, exercise and fitness has always been a way of life for her. She combined her culinary skills with her commitment to healthy eating and became the founder of a nutrient-dense “power” cookie company.
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She sold “Bonnievilles” cookies to upscale supermarkets and grocers around New England. Hard work, seeking opportunities and leading a healthy lifestyle; these hallmark characteristics just didn’t compute with hearing the words, “You have Parkinson’s.”
Continue Reading more from WPC |
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Perspectives on Relationships, Intimacy and Parkinson’s Disease |
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From how to communicate clearly and maintain a healthy relationship, to how Parkinson’s disease symptoms can affect sex and intimacy – panelists in a Davis Phinney Foundation webinar spotlight their experiences, share stories, and offer their advice for others with the condition. |
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How can people with Parkinson’s maintain healthy relationships following a diagnosis? At a recent webinar from US charity Davis Phinney Foundation, four women focused on ‘Relationships, intimacy and Parkinson’s’, discussing how all these can be impacted when living with the condition.
Continue Reading on Parkinson's Life |
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Patients’ Pain Spikes During Levodopa ‘Off’ Periods, Study Finds |
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People with Parkinson’s disease experienced significantly more pain during periods without Levodopa therapy, a small study concluded.
This finding suggests that the presence, or worsening, of pain might alert doctors to the need to adjust or review current medication use in this patient population. |
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The study, “Effect of medication withdrawal on pain in Parkinson’s disease patients — an observational study based on a sample of patients without antiparkinsonian medications,” was published in the journal Revista da Associação Médica Brasileira.
Continue Reading On Parkinson's News Today |
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Disclaimers!
Many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
Please refer to the highlighted links for contact information and updates regarding availability.
We ask that you practice caution when participating in all programs especially exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe location, move at your own pace and preferably with a partner - either with a caregiver or video exercise with a friend! |
| Support Groups
The PAC Virtual Support Group will continue every first Wednesday of the month at 2:00 P.M. Our next Virtual Support Group will be July, 7th at 2:00 P.M.
PAC assists 90+ support groups in NC and SC. Click here to view our Support Groups.
If you have questions about a specific group please contact the Support Group leader. |
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Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Please check the programs affiliated link for more information. |
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For those of you in Charlotte who have attended our Dance for Parkinson’s class with Gretchen Jax, click here to see her most recently recorded class. Anyone from anywhere is welcome to join! Dance and Sing for PD classes are now being held online. Check danceforparkinson.org or click here for more information. |
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Coordinated Caregiving: A New Support Program for Family Caregivers in North Carolina with Lisa Fletcher and SeniorLink. |
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| The Caregiver TLC Research Program offers FREE ONLINE
support to caregivers in NC. Caregivers will complete
six weekly virtual Zoom sessions led by trained facilitators. This
workshop will teach coping skills to deal with stress, depression and burden, and strategies to improve quality of life.
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THRIVE: Parkinson's Online Community Exercise-Education-Support! Have a Parkinson's Specialist as your coach
and guide!! |
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| Facebook Live Parkinson's Speech Exercises |
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| Allison Hingley, neurologically-specialized Music Therapist, is offering a new (free) group music therapy program to address vocal quality improvement for people with PD. This will be held weekly, starting on June 10th. |
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The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with Parkinson's disease (PD). In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30 to 45 mins of your time. |
| You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.
If you have any concerns about the study, you can contact: PI: Jared W. Skinner, (828)-262-2512 or skinnerjw@appstate.edu |
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LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses), to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices). |
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The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete. |
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Volunteer with PAC!
For opportunities to assist our PAC team with projects relating to development, digital marketing and communications, and community surveys, OR to serve as a Board Member, Committee Member, or PAC Ambassador, click on the "Learn More" button below, or contact Associate Director Lauren Tankersly at ltankersly@parkinsonassociation.org.
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Would you like to offer your services or insight in a different way? Share your feedback to help us improve PAC's programs and raise awareness about our organization.
We are looking for community members to provide complete surveys and share testimonies on PAC’s behalf. We’re welcoming program participants, care partners, and industry leaders to take just a few minutes to complete the survey below. Also, if you have just a bit more time, we would love to hear a testimony about PAC’s services.
If you or someone you know has been positively impacted by our educational webinars and programs, movement therapy classes, support groups, toll free resource line or even our regular communications, you can submit a written or video testimony to Lauren Tankersly at ltanekrsly@parkinsonassociation.org. We appreciate your time and support! |
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Stay Connected with PAC for the Latest News |
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Let's get social!
Are you a follower? |
Are you a fan of PAC on Facebook? Do you follow us on Twitter? Stay informed and get the latest PD news and events. Click below on the social media outlets you already use and start getting social with PAC today! Check out our NEW Instagram! @parkinsonscarolinas |
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It is our mission to empower individuals and families living in the Carolinas who are affected by Parkinson’s disease through education, outreach and direct support. Therefore, all programs and services provided by Parkinson Association of the Carolinas (PAC) are at no cost to you.
Donate Now! |
| Call us toll-free 866.903.PARK (7275) Our toll-free resource line is available Monday through Friday during normal business hours.
If we are unavailable at the time of your call please leave us a message. Call today to speak to a PAC team member! |
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