"serving as a resource for individuals and their families affected by Parkinson's disease in the Carolinas, through education, community outreach and direct support" |
Dear *{{First Name}}* ,
Spring has sprung, and the flowers are in bloom! Come out for PAC's "TipToe thru the Tulips" fundraiser on April 14th-16th, and help us reach our goal of filling Symphony Park with 200 giant tulips! Proceeds will go toward PAC's cost-free services benefitting the local Parkinson's community. View the full flyer here!
Save the date for more PAC FUNdraisers! MoveIt! Walk in Myrtle Beach, SC on May 8th, 2021
https://give.parkinsonassociation.org/moveitwalkmyrtlebeach2021 MoveIt! Walk in Charlotte, NC on May 22nd, 2021 https://give.parkinsonassociation.org/moveitwalkcharlotte2021 Congratulations to our Early Registration prize winners Tatanish Campbell and Carey Swanson!
Save the date for more PAC Programs! Our next Virtual Support Group will take place on Wednesday, April 7th, 2021 at 2PM, and we are expanding our programs to include Wellness Wednesdays on the third Wednesday of every month! Join us Wednesday, April 21, 2021 for our second Wellness Wednesday Webinar focused on resolutions versus mindsets!
_________________
We will continue to prioritize the needs of our Parkinson's community, and we will keep building upon our programs with commitment and creativity. Of course, we will do this while keeping a pulse on any COVID-19 restrictions and following health guidelines. It is our pleasure to deliver meaningful services, and we look forward to broadening our reach and growing our impact. Let's move forward together! |
|
|
We are extremely grateful to all of our sponsors for their continuous support in bringing you more educational opportunities at no cost to you! Please register for the webinars below for exclusive educational opportunities brought to you by the PAC team and our sponsors! |
|
|
For information on our sponsors and subsequent webinars click the more information button below.
More information for all webinars, including registration links will be emailed and posted on both social media and our website in the following weeks! Our social media platforms can be accessed at the bottom of your email by clicking the designated social media icon, be sure to follow us on Facebook and Twitter for regular updates!
Please note there is no cost to participate in these webinars, and all information provided is a paid advertisement by the sponsoring company and is not an endorsement by Parkinson Association of the Carolinas of the product or service. As with any treatment option or medication, please consult your physician. We hope to see you there! |
|
|
|
Introducing, the newest Movement Disorder Specialist at Wake Baptist. Dr. Mary Ann Thenganatt received her medical degree from Boston University School of Medicine in Boston, MA. After completing an internship at UCLA Medical Center in Los Angeles, CA, she pursued a residency in neurology and fellowship training in movement disorders at Columbia University Medical Center in New York, NY. |
|
Dr. Thenganatt previously held faculty positions at two large movement disorders centers, initially at Baylor College of Medicine in Houston, TX and most recently at The University of Pennsylvania in Philadelphia, PA. A board-certified neurologist, Dr. Thenganatt has extensive experience in the diagnosis and management of all movement disorders, including treatment with Botulinum Toxin and Deep Brain Stimulation (DBS) therapies. |
|
|
The Many Variations of Carbidopa/Levodopa -The Mainstay of Parkinson's Disease Treatment |
|
Loss of neurons in the brain that use dopamine to communicate is one of the hallmark features of Parkinson’s disease (PD), causing slowness, stiffness, tremor and balance problems. Replacing the brain’s dopamine is therefore one of the key treatment strategies to help improve the motor symptoms of PD. Dopamine itself does not cross the blood-brain barrier and therefore can’t be used to treat PD. |
|
Instead, Levodopa, a precursor of dopamine, which does cross the blood-brain barrier is used. If Levodopa is ingested by itself however, it breaks down in the bloodstream before it crosses into the brain, so Levodopa is typically ingested with another medication that stops it from breaking down. In the US, the combination of Carbidopa/Levodopa is used.
Continue Reading more from APDA |
|
| 7 Famous Women with Parkinson’s |
|
Most people can name at least one famous man with Parkinson’s, but can you name a famous woman? As part of our Women and Parkinson’s campaign, we highlight some of the women in the public eye who have lived with the condition, from the actress Valerie Perrine – who played a showgirl in ‘Diamonds Are Forever’ and a villain’s moll in ‘Superman’ – to US singer-songwriter, and friend of Dolly Parton, Linda Ronstadt. |
| Valerie Perrine
The seventies silver screen icon Valerie Perrine (pictured above) launched her career with a role as a Las Vegas showgirl in ‘Diamonds Are Forever’ (1971). She went on to star alongside some of the most celebrated actors of the time, including Dustin Hoffman, Jack Nicholson, Robert Redford and Christopher Reeve in the original ‘Superman’ film in 1978.
Continue Reading on Parkinson's Life |
|
|
Stress Linked to Harsher Parkinson’s Symptoms, but Mindfulness May Help |
|
People with Parkinson’s disease experience more stress than those without this disease, and high stress levels associate with a worsening of symptoms, research based on a patient survey reported.
Mindfulness, a practice of maintaining a heightened state of awareness of thoughts and feelings, may help to lower stress in people with Parkinson’s, especially anxiety and depressive feelings. |
| |
|
Monthly Virtual Support Group |
| | Guest Speaker: Rock Steady Boxing Coaches Rob Fisher and JT *To register please click the highlighted "Monthly Virtual Support Group" if prompted enter the Meeting ID:82414839345 | Pass Code: 793980 |
|
|
Wellness Wednesdays: Resolutions vs. Mindsets |
| Parkinson Association of the Carolinas is excited to bring you our second focused on Resolutions Vs. Mindset
Wellness Wednesday Wednesday, April 21st, 2021 at 3:30PM |
| |
|
| | Featured Presenters: Dr. Andrew Falconer *To register please click the highlighted link "PD and Nutrition" if prompted enter the Meeting ID: 836 1505 1817 | Pass Code: 725831 |
|
|
| Help us reach our goal of filling Symphony Park with 200 giant tulips! April 14th-16th, 2021 You can purchase a tulip in honor or memory of someone affected by Parkinson's or simply in support of PAC! Proceeds will go toward PAC's cost-free services benefitting the local Parkinson's community. |
| |
|
| | Congratulations to our Early Registration prize winners Tatanish Campbell and Carey Swanson!
Register today for a chance to win more prizes, raffles and giveaways! |
|
|
| | * Dates for each vary. For more information or to register please click the highlighted "YOPD", "YOPD for Women" or "Care Partners" |
|
|
Disclaimers!
Many meetings have been suspended until further notice, others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
Please refer to the highlighted links for contact information and updates regarding availability. We ask that you practice caution when participating in all programs especially exercise programs.
Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe location, move at your own pace and preferably with a partner -either with a caregiver or video exercise with a friend! |
| | |
|
Additional ongoing programs are listed below. Note that some of the programs listed below are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change, please check the programs affiliated link for more information. |
|
|
| The Poise Project presents the Spring Poised for Parkinson's classes Beginning April 12th and April 19th, 2021 |
| |
|
| Facebook Live Parkinson's Speech Exercises |
| |
|
| Rock Steady Boxing Headquarters is now offering
classes online via YouTube!
More Information Here.
Classes in Hickory, NC with Coach Rob Fisher are now Monday, Wednesday and Friday at 9AM and 10:30AM. For more information call (980) 245-2786 |
|
|
| Dance and Sing for PD classes are now online.
Check danceforparkinson.org or more information here!
For those of you in Charlotte who have attended our
Dance for Parkinson’s class with Gretchen Jax, click here to see her most recently recorded class.
|
|
|
|
Research and Volunteer Opportunities |
|
| |
Volunteer with PAC!
For opportunities to assist our PAC team with projects relating to development, digital marketing and communications, and community surveys, OR to serve as a Board Member, Committee Member, or PAC Ambassador, click on the “More Information” button below and get started today! To volunteer at an upcoming PAC event, contact Associate Director, Lauren Tankersly at ltankersly@parkinsonassociation.org.
|
|
Would you like to offer your services or insight in a different way? Share your feedback to help us improve PAC's programs and raise awareness about our organization.
We are looking for community members to provide complete surveys and share testimonies on PAC’s behalf. We’re welcoming program participants, care partners, and industry leaders to take just a few minutes to complete the survey below. Also, if you have just a bit more time, we would love to hear a testimony about PAC’s services. If you or someone you know has been positively impacted by our educational webinars and programs, movement therapy classes, support groups, toll free resource line or even our regular communications, you can submit a written or video testimony to Lauren Tankersly at ltanekrsly@parkinsonassociation.org.
We appreciate your time and support! |
|
|
|
| Dr. Vanessa Hinson, Director of the Parkinson’s Foundation Center of Excellence at MUSC, recently spoke to the attendees at a support group meeting about two ongoing trials in the Charleston area that require minimal or no visit to a medical facility. |
| The TOPAZ Study is a fracture prevention trial where the medication will be administered during a one-time, 45-minute visit to your home.
Please contact Sandra Wilson at wilsosan@musc.edu for more information. You do not have to be an MUSC patient to participate! |
|
|
|
|
LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses), to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices). |
| |
|
|
The purpose of this study is to understand the experiences of people with Parkinson’s while in the hospital. Participation would entail attending a single, two-hour online focus group. During this focus group, which would be attended by approximately 8-10 people, we will be asking questions about your hospitalization experience, including the medical team’s familiarity with Parkinson’s symptoms and treatment, positive aspects of the care provided and what could have improved the stay in the hospital. Through gathering this information, we are hoping to develop patient-centered recommendations for improvement of experiences and care of people with Parkinson’s during hospitalization. The study is being funded by a grant through the Parkinson’s Foundation.
|
|
This research team is, looking for people with Parkinson’s diagnosed (and/or their partner or family member who was involved in the care) who experienced a stay in a hospital sometime between September 2018 and the end of February 2020. The recruitment flyer for this study is attached to this email. Anyone who may be interested in participating, has questions or would like to learn more, is welcome to reach out to Jessica Shurer. IRB Study #20-2474 IRB contact information: (919) 966-3113
irb_subjects@unc.edu Recruitment Flyer |
|
|
|
|
The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete. |
| |
|
It is our mission to empower individuals and families living in the Carolinas who are affected by Parkinson’s disease through education, outreach and direct support. Therefore, all programs and services provided by Parkinson Association of the Carolinas (PAC) are at no cost to you.
Parkinson Association of the Carolinas (PAC) is grateful to our amazing donors and community that makes what we do possible! To donate to PAC and our mission, click the "DONATE NOW!" button below or click the highlighted "DONATE NOW!" here.
|
|
|
Let's get social!
Are you a follower? |
Are you a fan of PAC on Facebook? Do you follow us on Twitter? Stay informed and get the latest PD news and events. Click below on the social media outlets you already use and start getting social with PAC today! Check out our NEW Instagram! @parkinsonscarolinas |
|
It is our mission to empower individuals and families living in the Carolinas who are affected by Parkinson’s disease through education, outreach and direct support. Therefore, all programs and services provided by Parkinson Association of the Carolinas (PAC) are at no cost to you.
Donate Now! |
| Call us toll-free 866.903.PARK (7275) Our toll-free resource line is available Monday through Friday during normal business hours.
If we are unavailable at the time of your call please leave us a message. Call today to speak to a PAC team member! |
| You shop. Amazon gives.
Consider selecting Parkinson Association of the Carolinas as your nonprofit on Amazon Smile and Amazon will donate a portion of your purchase to PAC.
Click here to get started! |
|
|
Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*
*{{Unsubscribe}}* |
| |
|
|
