"serving as a resource for individuals and their families affected by Parkinson's disease in the Carolinas, through education, community outreach and direct support" |
February Newsletter - 2021 |
Dear *{{First Name}}* , We made it! We are officially one month into 2021 and we couldn't be happier with everyone's positivity and perseverance to keep moving forward!
Speaking of MOVING.... Save the date and start FUNdraising today!
MoveIt! Walk in Myrtle Beach, SC on May 8, 2021 https://give.parkinsonassociation.org/moveitwalkmyrtlebeach2021 MoveIt! Walk in Charlotte, NC on May 22, 2021
https://give.parkinsonassociation.org/moveitwalkcharlotte2021
Register today, get started fundraising and creating teams. Everyone who is registered by March 17 will be entered into the drawing for a Fitbit! SAVE THE DATE: March 16, 2021 at 3:30 PM Ann Marie Worman, Executive Director of Parkinson Association of the Carolinas (PAC), will be joining Council on Aging in Union County for a virtual presentation to discuss PAC programs and a new wellness webinar series beginning in March for caregivers. PAC empowers people with Parkinson’s and their caregivers through education, outreach, and direct support. Call 704-292-1797 to register for the Zoom link _________________
We will continue to prioritize the needs of our Parkinson's community, and we will keep building upon our programs with commitment and creativity. Of course, we will do this while keeping a pulse on any COVID-19 restrictions and following health guidelines. It is our pleasure to deliver meaningful services, and we look forward to broadening our reach and growing our impact. Let's move forward together! |
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We are extremely grateful to all of our sponsors for their continuous support in bringing you more educational opportunities at no cost to you! Please register for the webinars below for exclusive educational opportunities brought to you by the PAC team and our sponsors! |
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Join Dr. Andrew Falconer, MD in "PD and Nutrition" on Thursday, February 25th, 2021 at 6:00 P.M., sponsored by Abbott Pharmaceuticals. To register, click on the following link: REGISTER NOW, or click on the "PD and Nutrition" above. If prompted enter the Meeting ID: 821 7023 6438 | Pass Code: 110937 |
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For information on our sponsors and subsequent webinars click the more information button below.
More information for all webinars, including registration links will be emailed and posted on both social media and our website in the following weeks! Our social media platforms can be accessed at the bottom of your email by clicking the designated social media icon, be sure to follow us on Facebook and Twitter for regular updates!
Please note there is no cost to participate in these webinars, and all information provided is a paid advertisement by the sponsoring company and is not an endorsement by Parkinson Association of the Carolinas of the product or service. As with any treatment option or medication, please consult your physician. We hope to see you there! |
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Let's Talk About Palliative Care and Parkinson's Disease |
| People with Parkinson’s disease (PD) and their care partners are always searching for ways to make their lives easier, healthier and fuller. Using the principles of palliative care to enhance PD-specific care is one way to do that.
Palliative care is a medical approach for those with complex illnesses, in which the focus is on maximizing quality of life. This approach can be applied at any stage of the disease, even at the time of diagnosis. Many people with PD have experienced this type of approach from their physicians, often to a limited degree, when a treatment or therapy is added to improve quality of life. |
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However, these small steps are often not enough and a change in the practice of PD medicine is slowly underway, with the goal of providing comprehensive and consistent palliative care throughout the disease course. In order to provide this level of care, some formal palliative care programs for PD have been developed, but more such programs are needed across the country.
Continue Reading more from APDA |
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5 Things You Might Not Know About DBS |
"I hope that more patients will benefit from deep brain stimulation" -Dr Lennart Stieglitz (pictured above) |
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In a recent interview, Dr Lennart Stieglitz – a neurosurgeon based in Zurich, Switzerland – shares insight into deep brain stimulation (DBS), a procedure in which electrodes are placed inside the brain to treat Parkinson’s disease and other movement disorders. |
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With over a decade’s experience in performing DBS surgery for people with Parkinson’s disease, Dr Stieglitz shares five things you might not know about the therapy.
Continue Reading on Parkinson's Life |
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Parkinson's in the News: January |
| | A study from Finland reveals that people with schizophrenia spectrum disorder (SCD) have a higher risk of developing Parkinson’s disease later in life.
In combined regional and national approaches to the study, researchers analysed data from more than 25,000 people with Parkinson’s disease. The results showed that a greater proportion of people with Parkinson’s were previously diagnosed with SCD than those without Parkinson’s disease.
The researchers concluded that the increased risk of Parkinson’s in people with SCD could be linked to the effects of medications common in SCD treatments, or to the increased vulnerability of the dopamine system in SCD.
Continue Reading On Parkinson's Life |
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Monthly Virtual Support Group |
| | Guest Speaker: Paitra Modlin, Physical Therapist, CBIS clinical interest Neurological Disorders
*To register please click the highlighted "Monthly Virtual Support Group" if prompted enter the Meeting ID:82414839345 | Pass Code: 793980 |
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| Parkinson Association of the Carolinas has partnered with Abbott Pharmaceuticals to present
"PD and Nutrition" Thursday, February 25, 2021 at 6PM |
| Featured Presenters: Dr. Andrew Falconer
*To register please click the highlighted link "PD and Nutrition" if prompted enter the Meeting ID: 821 7023 6438 | Pass Code: 110937 |
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| A Unique New Live Online Group Class from The Poise Project! For people living with Parkinson's and their Care Partners! |
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Starting in the South Carolina Coastal Area in January! Mondays & Thursdays, 2:00pm-3:45pm, January 18 through March 18, 2021 |
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| Centralina Health Solutions presents Building Better Caregivers
A six-session, weekly virtual workshop to help caregivers take better care of themselves and provide the best care possible for their loved ones.
View the full flyer here. |
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Wednesdays, February 3rd-
March 10th, 2021
9:30AM TO 12:00PM To register call Katie at
(704) 331-4787 |
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| Featured Presenters: Dr. Lilia Lovera *Attend virtually or in person. For more information or to register click the highlighted "Sleep Fragmentation in Parkinson's Disease" |
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| | Featured Presenters: Lisa Warren, MHS, OTR/L
Michael S. Okun, M.D.
Gretchen Rosswurm, M.S *To register please click the highlighted "Motor Symptoms Co-Management: Occupational Therapy and Neurology" |
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| Centralina Health Solutions presents Living Healthy at Home
Participate weekly in an interactive virtual setting
with people just like you living with chronic
disease. Ask questions, get answers, and learn
practical ways to manage your conditions.
View the full flyer here. |
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Thursdays, February 11th-
March 18th, 2021
9:30AM TO 12:00PM To register call Katie at
(704) 348-2729 |
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| The American Parkinson Disease Association presents "Cognition and PD"
Wednesday, February 17, 2021 at 12PM |
| Featured Presenters:
Dr. Kathleen Poston *To register please click the highlighted "Cognition and PD" |
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| | *To register please click the highlighted "New to Parkinson's? Steps to Take Today" |
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| | *To register please click the highlighted "Newly Diagnosed Event" |
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Disclaimers!
Many meetings have been suspended until further notice, others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.
Please refer to the highlighted links for contact information and updates regarding availability. We ask that you practice caution when participating in all programs especially exercise programs.
Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe location, move at your own pace and preferably with a partner -either with a caregiver or video exercise with a friend! |
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Additional ongoing programs are listed below. Note that some of the programs listed below are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change, please check the programs affiliated link for more information. |
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| Facebook Live Parkinson's Speech Exercises |
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| Rock Steady Boxing Headquarters is now offering
classes online via YouTube!
More Information Here.
Classes in Hickory, NC with Coach Rob Fisher are now Monday, Wednesday and Friday at 9AM and 10:30AM. For more information call (980) 245-2786 |
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| Dance and Sing for PD classes are now online.
Check danceforparkinson.org or more information here!
For those of you in Charlotte who have attended our
Dance for Parkinson’s class with Gretchen Jax, click here to see her most recently recorded class.
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| Dr. Vanessa Hinson, Director of the Parkinson’s Foundation Center of Excellence at MUSC, recently spoke to the attendees at a support
group meeting about two ongoing trials in the Charleston area that require minimal or no visit to a medical facility. The TOPAZ Study is a fracture prevention trial where the medication will be administered during a one-time, 45-minute visit to your home. |
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The ROPAD trial is an observational (no treatment) genetic study conducted during a single visit to the “little green house”, the MUSC Movement Disorders research site away from the hospital. These are two important trials and offer two ways you can help to further
our knowledge of PD, with easy participation. Please contact Tim at sheehant@musc.edu for more information. You do not have to be an MUSC patient to participate! |
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LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses), to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices). |
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| You're invited to participate in a study examining the positive and negative effects of living with Parkinson’s Disease during COVID-19. Anyone who is above 18 years of age, is mentally competent, and is diagnosed with Parkinson’s disease is eligible to participate. Participation in this study will help improve our knowledge of how Parkinson’s disease affects individuals, which can ultimately inform ways to help people adjust to their disease and have an optimal quality of life. |
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It is our mission to empower individuals and families living in the Carolinas who are affected by Parkinson’s disease through education, outreach and direct support. Therefore, all programs and services provided by Parkinson Association of the Carolinas (PAC) are at no cost to you.
Parkinson Association of the Carolinas (PAC) is grateful to our amazing donors and community that makes what we do possible! To donate to PAC and our mission, click the "DONATE NOW!" button below or click the highlighted "DONATE NOW!" here.
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Let's get social!
Are you a follower? |
Are you a fan of PAC on Facebook? Do you follow us on Twitter? Stay informed and get the latest PD news and events. Click below on the social media outlets you already use and start getting social with PAC today! Check out our NEW Instagram! @parkinsonscarolinas |
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It is our mission to empower individuals and families living in the Carolinas who are affected by Parkinson’s disease through education, outreach and direct support. Therefore, all programs and services provided by Parkinson Association of the Carolinas (PAC) are at no cost to you.
Donate Now! |
| Call us toll-free 866.903.PARK (7275) Our toll-free resource line is available Monday through Friday during normal business hours.
If we are unavailable at the time of your call please leave us a message. Call today to speak to a PAC team member! |
| You shop. Amazon gives.
Consider selecting Parkinson Association of the Carolinas as your nonprofit on Amazon Smile and Amazon will donate a portion of your purchase to PAC.
Click here to get started! |
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