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Programs, Events, & Resources for November 2021 |
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| Don't Miss This Month's "Paint for PAC" Fundraiser! |
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This month, our community partners at Carepoint and All About Seniors Magazine will be hosting a "Paint for PAC" fundraiser with all proceeds benefiting PAC!
Date: Thursday, 11/11/21
Time: 5:00 P.M. - 7:00 P.M. Location: Carepoint (6401 Carmel Road, Suite 102 Charlotte, NC 28226) Join us for a fun evening of painting and camaraderie while supporting our organization! |
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Join PAC's FREE Virtual Programs for this Month! |
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Holly Kennedy, PT, CAPS, ECHM Guest Speaker |
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Virtual Support Group Date: Wednesday, November 3rd at 2:00 PM
Topic: Maximizing Safety, Function & Independence in your Home with Parkinson’s disease (PD)
Presenter: Holly Kennedy & Janet Ceraldi of In Place with Grace To sign up, click on the green "REGISTER" button. If prompted, please enter the following meeting information: ID: 824 1483 9345 | Passcode: 793980
Click here to learn more about this program. |
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Janet Ceraldi, OT/R, CEAC Guest Speaker |
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** Our Virtual Support Group takes place the first Wednesday of every month. If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you.
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| Dr. Federico Rodriguez-Porcel Guest Speaker |
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If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you. |
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Terrie Reeves Guest Speaker |
| Wellness Wednesday Webinar
Date: Wednesday, November 17th at 3:30 PM Topic: 10 Train for Life Tips
Presenter: Terrie Reeves, Consultant, Coach, & Trainer
To sign up, click on the green "REGISTER" button. If prompted, enter the following meeting credentials:
Meeting ID: 842 1318 4823 | Passcode: 745792 |
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** Our Wellness Wednesday webinar takes place the third Wednesday of every month. If you need assistance registering for a program, you can call our office at 980-245-2786 or toll free at 1-866-903-PARK (7275), and a staff member will be happy to help you. |
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PAC Introduces 3 New FREE Exercise Programs! |
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Gentle Yoga Schedule: 2nd & 4th Tuesdays at 11:15 A.M.
Location: Lake Norman Muay Thai (107 Commons Drive, Suite I Mooresville, NC 28117) |
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Pedaling for Parkinson's Schedule: Tuesdays & Thursdays at 11:45 A.M. Location: Cape Fear Fitness - 5130 Southport-Supply Rd, SE #103 Southport, NC 28461 |
| Dance for Parkinson's Class Schedule: Fridays at 12:30 P.M. Location: Southminster - 8919 Park Road Charlotte, NC 28210 |
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| | Instructor Jennifer Youse |
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Join One of PAC's FREE Gentle Yoga Classes! |
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| PAC offers FREE in-person and virtual Gentle Yoga classes on a weekly basis in both North and South Carolina. Please see the schedule below.
In-Person Classes - Mondays at 2:30 P.M. | Unity Presbyterian Church – 303 Tom Hall Street, Fort Mill, SC 29715
2nd & 4th Tuesdays, 11:15 A.M. at Lake Norman Muay Thai - 107 Commons Drive, Suite I Mooresville, NC 28117 -
Thursdays at 10 A.M. | India Hook United Methodist Church – 3300 Mount Gallant Road Rock Hill, SC 29732
- Thursdays at 2:30 P.M. | Southminster – 8919 Park Road Charlotte, NC 28210
- Fridays at 1:30 P.M. | Levine JCC Charlotte – 5007 Providence Road Charlotte, NC 28226
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1st & 3rd Saturdays at 11:00 A.M. | Southminster – 8919 Park Road Charlotte, NC 28210
Virtual Class - Weekly on Wednesdays at 12:30 P.M. on Zoom
Click here to join the class, and enter the following Zoom meeting credentials if prompted: Meeting ID: 894 9599 4707 | Passcode: 752787. |
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Support Groups
PAC assists 90+ support groups in NC and SC. If you have questions about a specific group, please call 980-245-2786 or email pac@parkinsonassociation.org.
Movement Therapy Programs
PAC will continue offering Gentle Yoga, Pedaling for Parkinson's, and Dance for Parkinson's. To visit our website for other movement therapy/exercise opportunities across the Carolinas, click here. |
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* Disclaimers * As a result of the pandemic, many meetings have been suspended until further notice, and others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety. We ask that you practice caution when participating in all programs - particularly exercise programs. Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe environment, move at your own pace, and try to exercise with a partner or an accredited instructor. |
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Dance and Sing for PD classes are now being held online.
To learn more, click here. |
| Rock Steady Boxing Headquarters offers classes online via YouTube! To learn more, click here. |
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Facebook Live Parkinson's Speech Exercises
Monday - Friday, 11:00 AM Tuesday, 7:00 PM
To learn more, click here. |
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Allison Hingley, neurologically-specialized Music Therapist, is offering a new FREE group music therapy program to address vocal quality improvement for people with PD.
To view the flyer, click here. |
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THRIVE: Parkinson's Online Community Exercise-Education-Support! Have a Parkinson's Specialist as your coach and guide! .
To view the flyer, click here. |
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The Caregiver TLC Research Program offers FREE online support to caregivers in NC. Caregivers will complete six weekly virtual Zoom sessions led by trained facilitators. This workshop will teach coping skills to deal with stress, depression, and burden and offer strategies to improve quality of life. To view the flyer, click here. |
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Coordinated Caregiving: A New Support Program for Family Caregivers in North Carolina with Lisa Fletcher and SeniorLink.
To view the flyer, click here. |
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Pedaling for Parkinson's Live Class Schedule:
M/W/F with Tom: 11:30 AM CT Zoom Mtg. ID: 991 6010 6963 T/TH/SA with John: 8:00 AM CT Zoom Mtg. ID: 815 1440 7600
Click here to join a class. |
| Windsor PD Support Group Meetings are held on the first Monday of each month at 10:00 A.M. at Windsor Run For more information,
contact Christy Finn at christy.finn@erickson.com. |
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Parkinson's Community News |
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Low Levels of Vitamin B6 and B12 Linked to Patients’ Nerve Damage |
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Neuropathy, or nerve damage, was linked to abnormally low levels of the vitamins B6 and B12 in three people with Parkinson’s disease, according to a case report.
“All patients were consecutively identified within one year at a single institution,” the researchers wrote, which suggests that neuropathy associated with low levels of these vitamins “may be an unrecognized entity.” As such, the team stressed the importance of measuring levels of vitamins B6 and B12 when neuropathy is suspected.
“Monitoring B6 and B12 levels even if neuropathy symptoms are not present should also be considered,” the researchers added. “Timely recognition and treatment of both vitamin deficiencies could lead to improved outcomes in these patients.”
Continue Reading On Parkinson's News Today |
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Deep brain stimulation is an established treatment for people with Parkinson’s disease, but industry experts think that its fast evolution has led to an information gap. This means that those who may benefit from the technology may not be aware of all the latest innovations – and how these new developments in the field could be of benefit to themselves, friends or family members.
DBS treatment involves the placement of two electrodes into the brain, which then deliver electrical impulses through a connected stimulator. Targeting specific regions of the brain, the impulses can improve Parkinson’s symptoms by blocking certain signals and helping to improve uncontrolled muscle movements.
Professor Jens Volkmann, who heads a team at the University of Würzburg, Germany, says: “The impact of DBS is all about location”. That’s why, when it comes to placing these electrodes, clear visualization of the tech’s inner workings could offer a step forward in Parkinson’s treatment.
Continue Reading On Parkinson's Life |
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DBS visualisation software: a new era for Parkinson’s disease treatment? |
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Web-Based Speech Tool May Help ID Parkinson’s in Real World |
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A new tool that analyzes speech using real-world, web-based recordings — participants are recorded via a webcam and a microphone connected to a personal computer or laptop — identified Parkinson’s disease patients with 74% accuracy, a study demonstrated.
Moreover, this speech tool — called Parkinson’s Analysis with Remote Kinetic-tasks, or PARK — performed equally well when sex and age were assessed separately, making it a useful diagnostic test for both men and women, of all ages, the study found. Most importantly, according to the researchers, more than 90% of the participants were tested at home, in situations that “contain real-world variability.”
“Using this tool, we can collect data from almost anyone anywhere with an audio-enabled device and help the participants screen for [Parkinson’s disease] remotely, contributing to equity and access in neurological care,” the scientists wrote.
Continue Reading On Parkinson's News Today |
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"Well, ‘myself’ was a kid that grew up just outside New York City and went off to college in Western Massachusetts, US. I always wanted to be a lawyer – I was born to be a lawyer. I used to watch the drama series ‘Perry Mason’ and act out the opening arguments.
I spent several magical years among the ivy-covered buildings at Cornell Law School in the US. I had a great experience in law school. Most people don’t, but I did. After that I worked with a company for 10 years, learning how to be a lawyer and passing three different bar exams. Then, five years after I took a job with a steel company as a general counsel, I was diagnosed with Parkinson’s disease.
I was able to work for another seven years before Parkinson’s, fatigue and other non-motor issues caught up – and I decided to do something else."
Continue Reading On Parkinson's Life |
| “Speaking provides me with purpose and meaning” |
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| Pacific Neuroscience Institute presents: "Everything Parkinson’s Webinar"
Monday, November 1st at 12:00 PM
To join, click here. |
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The American Parkinson’s Disease Association presents: "Spotlight on Living Your Best Live: Accessing the Treatments You Need" Wednesday, November 3rd at 2:00 PM
To register, click here. |
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The Davis Phinney Foundation presents: "Care Partners" Saturday, November 13th, 9:00 A.M. - 1:20 P.M.
To register, click here. |
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The Michael J. Fox Foundation presents: "Steps Closer to Stopping Parkinson's: 2021 Research Review"
Thursday, November 18th at 12:00 P.M.
To register, click here. |
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| MUSC presents:
"Parkinson's Disease Orientation for Newly Diagnosed Patients & Caregivers" Thursday, November 18th at 2:00 P.M.
To register, click here. |
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Additional ongoing programs are listed below. Note that some of these programs are not facilitated by Parkinson Association of the Carolinas (PAC) and are subject to change. Click the links for more details. |
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| | The goal of the study is to understand how restrictions from COVID-19 effected physical activity levels in those with Parkinson’s disease (PD). Physical activity has been known to improve many symptoms in patients with PD. In this study, you will participate in one (1) virtual meeting. In total, this study will require around 30-45 minutes of your time. You will be asked to answer surveys about your current physical activity level, cognitive abilities, and balance confidence. Following the questionnaires, you will be asked questions about how COVID 19 has affected your ability to participate in physical activity.
If you have any concerns about the study, you can contact: PI: Jared W. Skinner at 828-262-2512 or skinnerjw@appstate.edu. |
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LSVT Global and CurePSP are partnering with Google for new study called Project Euphonia. Project Euphonia is looking for volunteers with moderate to severe speech disorders associated with Parkinson’s (or other Parkinsonism-related diagnoses) to participate in this new study involving recording spoken phrases to help improve automatic speech recognition software (e.g. phones, computers, devices).
If you are interested in learning more about Project Euphonia, click here. Please contact project.euphonia@lsvtglobal.com with any questions.
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The Social Communication and Neuroscience Lab at East Carolina University is looking for individuals diagnosed with Parkinson’s disease (PD) to participate in a online research survey. Participation involves completion of a survey that consists of five short questionnaires about mental health, demographic variables, and coping during the COVID-19 pandemic and takes about 15-20 minutes to complete. To access the survey, click here. For questions, contact Kathrin Rothermich at 252-744-2329 or rothermichk17@ecu.edu. |
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If you have a diagnosis of Parkinson’s disease (PD), you are invited to participate in a research study. Sydney Richards, a Master’s student in the Genetic Counseling Training Program at the University of Maryland School of Medicine is conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing. We need your help and want to hear about your experience and opinions! People who have and have not had genetic testing are encouraged to take part! The study includes just a short, online survey that should only take about 15 minutes to complete. All answers are anonymous. This study is voluntary, and your decision to participate will not affect your medical care. If you are interested in learning more about this study, please use the link below by November 16th, 2021.
To learn more about the survey, click here. |
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PAC's Toll-Free Resource Line is here to Help! |
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| Staff Answered Toll-Free Resource Line - Available Monday - Friday, 9:00 A.M. - 5:00 P.M.
- You can call for PD related questions, resources, & referrals.
- You can learn about PAC's cost-free programs.
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Call 1-866-903-PARK (7275) or email pac@parkinsonassociation.org.
For more information, click on the green "LEARN MORE" button. |
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Support PAC's Cost-Free Programs! |
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Volunteer with PAC
There are a variety of opportunities for individuals to volunteer with PAC in both an ongoing and/or one-time manner. Below is a list of available opportunities. - Board Member
- Committee Member
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Program Volunteer
- Event Volunteer
For more information about PAC's volunteer program and ways to get involved with the organization, click on the green "VOLUNTEER" button. You can also email Associate Director Lauren Tankersly at ltankersly@parkinsonassociation.org or call 980-245-2848.
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| Make Your Mark on Our Local Parkinson's Community! |
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Support PAC When You Shop on Amazon! |
| You shop. Amazon gives.
Consider selecting Parkinson Association of the Carolinas as your nonprofit on AmazonSmile, and Amazon will donate a portion of your purchase to PAC. Click here to get started. Shop PAC's Amazon Smile Charity List |
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Follow PAC on Social Media! |
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