Image

"serving as a resource for individuals and their families affected by Parkinson's disease in the Carolinas, through education, community outreach and direct support"

September Newsletter - 2020

Dear Friends,

 

PAC is diligently working to bring everyone very special opportunities for the remainder of 2020.

 

In addition to Gentle Yoga via Zoom (Tuesdays-Thursdays) our wonderful yoga instructor Aminta St.Onge will also begin Gentle Yoga in person at Southpark Mall Saturday September 19, 2020 at 10AM.

Details and more information will be made available here.

 

PAC will begin hosting its first VIRTUAL SUPPORT GROUP September 9, 2020 at 2PM.

This will give attendees the opportunity to meet our team, hear more about upcoming opportunities, and even let us know what you want from a virtual support group, what topics YOU want to talk about, and what information YOU want to hear.

Attendance and feedback from our community is critical to the success of this virtual support group and it's continuance even after the pandemic.

Register for the Virtual Support Group here.

 

Lastly, we will host our annual Caring for Parkinson's, Caring for You Symposium virtually on Saturday, September 12th at 9:00 A.M.

This event will be streamed live through Zoom, and the recorded sessions will be made available on our PAC YouTube channel after the event.

 

Updates, further information, and links to additional webinars from our sponsors will be made available on the PAC website, and social media as well as via email. To ensure you receive all information about upcoming events keep up with us on social media and keep an eye on email updates!

Details and more information will be made available here.
 If you are seeking information or have specific needs, please feel free to reach out to us by calling 980-245-2786 or emailing pac@parkinsonassociation.org. Let’s get through this together.

 

FIND OUT MORE


        News

Voting in the 2020 elections:

Alternate text

The 2020 elections are quickly approaching, below are some of the important dates to make sure your vote counts!

Oct. 15: Early voting begins (strongly encouraged)

Oct. 27: Absentee ballot requests (“vote by mail”) must be received by the county board of elections office by 5p.m.

Oct. 31: Early voting ends

Nov. 3: Election Day and in-person voting

Nov. 3: Absentee ballots must be received by the county board of elections by 5p.m. - it must be signed and have one witness. Absentee ballots received after 5 p.m. on Election Day will be timely only if they are received by mail no later than 5 p.m. on the third day following the date of the election, and postmarked on or before Election Day.

Important Registration Information:

-First time voters must complete and submit this form at least 25 days prior to the election

-If you aren't sure if you are registered to vote, visit the North Carolina State Board of Elections website to ensure you’re in the system and that your information is current.

-If you are a NC DMV customer, you can register to vote or update your voter registration through the “myNCDMV” app (click here for more information).

-If you have moved recently, or since the last time you voted, update your registration to reflect your current address.

-All registered voters may request absentee ballots for the November 2020 general election. To request an absentee ballot, complete and submit this form.

Align Speech Therapy:

Alternate text

Full Flyer Here.

Pawleys Island, South Carolina — Parkinson Voice Project, a 501(c)(3) nonprofit organization, has named Align Speech Therapy and Consulting as a recipient of its 2020 SPEAK OUT!® & LOUD Crowd® Grant Program. Align Speech Therapy and Consulting, a private practice based out of Pawleys Island, is one of two organizations in South Carolina that was awarded the international grant from
Parkinson Voice Project to support speech therapy services for people with Parkinson’s Disease. Align Speech Therapy and Consulting, owned and operated by Amanda Barclay
M.S. CCC-SLP, started offering the two-part speech therapy program, developed by Parkinson Voice Project, in 2018 to help individuals with Parkinson’s regain and maintain effective communication.

 Together, patients and their speech-language pathologist, work through a series of speech, voice, and cognitive exercises that make up the SPEAK OUT!® program.
“Amanda helped me regain my voice. I can speak strongly now. I have strategies for maintaining this growth that I have made, thanks to Amanda’s help,” stated Peggy Ryals,
a graduate of the program from Murrells Inlet.

For more information about Parkinson Voice project and its 2020 grant recipients, visit
www.parkinsonvoiceproject.org/.

To learn more about therapy services for a loved one
with Parkinson’s Disease or other neurological disease, including online therapy options, contact Align Speech Therapy and Consulting by phone at

(843) 936-0020 or by e-mail
at amanda@alignspeechtherapy.com.

 

Information from the WPC Blog, "Drooling in Parkinson's Disease":

Alternate text

Sialorrhea or drooling is a major unmet need that may affect people with Parkinson’s (PwP) over the course of their disease. The average person swallows about 1,000 times a day - and for most of us we don’t even know we are doing this. Drooling in PwP occurs when there is excessive saliva in the mouth which leaks out because people with 

Parkinson’s may subconsciously not be swallowing frequently enough.  This is important to recognize because not only is drooling uncomfortable and embarrassing but excessive saliva can also occur in the throat and lead to aspiration.

Continue Reading.

Information from the WPC Blog, "Helping People Living with Parkinson's Feel Better Every Day" :

Alternate text

Last June at the 5th World Parkinson Congress  in Kyoto, we presented the abstract “Motor performance and quality of life in a community exercise program for Parkinson’s disease.” Our poster highlighted the physical wellness and quality of life outcomes that we’re seeing with our community-based, holistic approach to helping people with Parkinson’s disease feel better every day. 

Continue Reading


     Upcoming Events

Image

The Micheal J.Fox Foundation presents Estate Planning Everyone Needs Now : Updating Important Documents in 2020, and Using Charitable Trusts as IRA Beneficiaries

 

September 2, 2020 at 12PM

 

Featured Presenters: 

 

Martin M. Shenkman, CPA, MBA, PFS, AEP, JD Founder, Shenkman Law 

 

Jonathan Blattmachr 
Principal, Pioneer Wealth Partners 

Image
Alternate text

Parkinson Foundation presents

Not What I Planned, For Me or My Family

 

September 15, 2020 - 12PM

 

 

Featured Presenters:

 

Allison Allen, MSW, LCSW Center of Excellence Coordinator Duke University Medical Center Parkinson’s Foundation Centers of Excellence

 

Special Guests:
Anna Grill and Paul Cluff 

Image

The Davis Phinney Foundation presents

 

Stumbling Blocks and Steppingstones with Edie Anderson

Wednesday, September 9, at  2PM


Other opportunities through the Davis Phinney Foundation are to the right.

Holistic & Supportive Care for Living Well with Parkinson's with Dr. Christopher Tarolli 
Wednesday, September 16, at 2PM

 

YOPD COUNCIL
The Third Thursday of Every Month at 3 pm EDT

Alternate text

Full Flyer Here.

Taking Charge of PD:

6-week virtual group program for people 
who are newly diagnosed with Parkinson's.

 

When:
Mondays
Oct. 12 - Nov. 16
4:00-5:30PM

For questions:


Jessica Shurer, MSW, LCSW
jshurer@neurology.unc.edu
919-843-1657

Poised For Parkinson's

Alternate text

Full Flyer Here.

North Carolina Coastal Area course:

Mondays & Thursdays, 10:30am-12:15pm

September 21 — November 19

To see if this course is appropriate for you, please contact the instructor: Jim Paisner More info: www.thepoiseproject.org/events/2020/nccoastal-pfp-course

South Carolina Coastal Area course:

Mondays & Thursdays, 2:30pm-4:15pm

October 8 — December 10

To see if this course is appropriate for you, please contact the instructor: Petrea Warneck More info: www.thepoiseproject.org/events/2020/sccoastal-pfp-course

Image
Image

Get Loud Stay Loud!

Support for daily speech/voice practice. 

More Information Here.

Image

 

Rock Steady Boxing Headquarters is now offering
classes online via YouTube!


More Information Here.

 

Image

Dance and Sing for PD classes are now online.

 

Check danceforparkinson.org or more information here!


For those of you in Charlotte who have attended our
Dance for Parkinson’s class with Gretchen Jax,
click here to see her most recently recorded class.

Image

 

Now offering online Pilates classes!

Check poewellnesssolutions.com

Image

 

Explore worldpdcoalition.org for articles,webinars, and more!

More Information Here.


             Programs 

Disclaimers

 

Many meetings have been suspended until further notice, others have pivoted to virtual meetings. Similarly, many classes or facilities are closed out of an abundance of caution for public safety.

 

Please refer to the highlighted links for contact information and updates regarding availability.

 

We ask that you practice caution when participating in exercise opportunities.

Talk to your doctor about what program would be best for you, stay hydrated, exercise in a safe location, move at your own pace and preferably with a partner either with a caregiver or video exercise with a friend!

Support Groups


PAC assists 90+ support groups in NC and SC. Click here to view our Support Group list for a group near you. If you have questions about a specific group please contact the Support Group leader. 

 

 

Exercise
Opportunities
Find your way to Move It! Exercise has been proven to slow the progression of the disease. Click here to view the most current list of exercise classes throughout NC and SC.

 

Online Classes:

Gentle Yoga:

Tuesday through Thursday at 10AM

Register via Zoom Here.

Use the pass code: 233011

RockSteady Boxing: streaming on YouTube

Dance for PD & Sing for PD: streaming here

Pilates for PD: streaming here

PWR! Moves: with Susan Wiseman at susan@ampitupfitness.com

in person classes will  be added in September

Invigorate Physical Therapy: www.invigoratept.com

LSVT -Speech Therapy: www.lsvtglobal.com

 

        Research Opportunities

Image

 

Dr. Vanessa Hinson, Director of the Parkinson’s Foundation Center

of Excellence at MUSC, recently spoke to the attendees at a support

group meeting about two ongoing trials in the Charleston area that require minimal or no visit to a medical facility. 

 

The TOPAZ Study is a fracture prevention trial where the medication

will be administered during a one-time, 45-minute visit to your home. 

The ROPAD trial is an observational (no treatment) genetic study conducted during a single visit to the “little green house”, the MUSC Movement Disorders research site away from the hospital. These are two important trials and offer two ways you can help to further

our knowledge of PD, with easy participation. Please contact Tim at sheehant@musc.edu for more information. 

You do not have to be an MUSC patient to participate!

 


 Connect with us!

Let's get social!
Are you a follower?
Are you a fan of PAC on Facebook? Do you follow us on Twitter? Stay informed and get the latest PD news and events. Click below on the social media outlets you already use and start getting social with PAC today!

Check out our NEW Instagram! @parkinsonscarolinas

Facebook Twitter Instagram
Image

Donate Now!

Image

Call us toll-free

866.903.PARK (7275)

Image

You shop. Amazon gives.

Consider selecting Parkinson Association of the Carolinas as your nonprofit on AmazonSmile and Amazon will donate a portion of your purchase to PAC.

Click here to get started!

Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*

*{{Unsubscribe}}*

Alternate text