Greetings Parkinson Association of the Carolinas (PAC)

Friends,

PAC’s office and resource telephone line will be

closed July 3rd through the 6th

in observance of Independence Day.

We will resume operations July 7th.

At this time, we do not have a date when visitors will be allowed into

the PAC office nor when community-based programs will resume.

Our number one priority is keeping you, the members of our community, safe.

We will continue to offer current  virtual programming

including some new opportunities in July.

We look forward to serving you this summer!

With gratitude, Your Parkinson Association of the Carolinas Team

Join Jessica Shurer, MSW, LCSW
Clinical Social Worker and Center
Coordinator of the Parkinson’s
Foundation Center of Excellence at
UNC School of Medicine

For Safe Travel Tips

Wednesday, July 8, 2020 1 PM

Click Here For More Information.

Mental Health & Parkinson's
Date: Thursday, July 9, 2020 at 3PM

Click Here For More Information.

Parkinson’s for Primary Care Doctors and

Allied Health Professionals

with Dr. Ray Dorsey
Tuesday, July 7, at 4 PM

YOPD Council Webinar Series
Thursdays beginning July 16 at 2 PM

Stumbling Blocks and Steppingstones

with Edie Anderson
Wednesday, July 22, at 2 PM

Click Here For More Information

Join Dr. Aashoo Mentreddi for a discussion about the

non-motor symptoms of Parkinson's disease, including sleep,

memory, mood, and autonomic dysfunction.

Saturday, July 11, 2020.

 Click Here For More Information

The Pandemic and Parkinson’s:

COVID-19 Impact on Disease, Care and Community
Thursday, July 16, 2020 at 12:00 PM

Click Here For More Information.

Potential topics include: Research and Clinical Trials ,

How to make the most of a Doctor’s visit ,

DBS & Focused Ultrasound,

Building your Care Team, COVID & Parkinson’s,

Non-motor symptoms, etc.

Fri, Jul 31, 2020, 11:00 AM – Sat, Aug 1, 2020, 2:00 AM

Click Here For More Information.

New Season of Expert Briefings starting in September! 

Click Here For More Information

Rock Steady Boxing Headquarters is now offering

classes online via YouTube!

Click Here For More Information

Dance for PD is now offering free access to online classes and free

live classes online daily!

Join them for their new program Sing for PD!

Check danceforparkinson.org for more information of click here!

For those of you in Charlotte who have attended our

Dance for Parkinson’s class with Gretchen Jax,

click here to see her most recently recorded class.

Now offering online Pilates classes!

Check poewellnesssolutions.com for more information or

click here!

Click Here For More Information

or explore worldpdcoalition.org for articles,

webinars, and more!

Click Here For More Information

Research and Volunteer Opportunities!

_________________________________________________________________________________________________

MUSC Research Opportunity

Dr. Vanessa Hinson, Director of the Parkinson’s Foundation Center

of Excellence at MUSC, recently spoke to the attendees at a support

group meeting about two ongoing trials in the Charleston area that require

minimal or no visit to a medical facility. 

The TOPAZ Study is a fracture prevention trial where the medication

will be administered during a one-time, 45-minute visit to your home. 

The ROPAD trial is an observational (no treatment) genetic study conducted

during a single visit to the “little green house”, the MUSC Movement

Disorders research site away from the hospital. 

These are two important trials and offer two ways you can help to further

our knowledge of PD, with easy participation. 

Please contact Tim at sheehant@musc.edu for more information. 

You do not have to be an MUSC patient to participate!

Duke University Research Opportunity 

 Duke is currently enrolling PD carepartners into a distance

education phase of their Mindfulness-Based Stress Reduction and PD study,

which will run on Tuesdays 2:00-3:30PM, July 14 until September 1

Mindfulness based stress reduction (MBSR) is a technique proven to reduce

stress by helping you live in the moment. Last year Duke ran a study of MBSR 

for people with PD and PD care-partners, which showed encouraging

improvements to participants’ stress levels. The next phase of this study,

a distance education offering of MBSR, has just begun. We hope to

determine if distance education courses also improve stress and will

reduce barriers to participation by allowing people to take part anywhere

they have an internet connection or a phone line.

Sign up here: 

https://redcap.duke.edu/redcap/surveys/

Access Code: 3H8KAPJMP

Rare Patient Voice Research Opportunity