PD & Caregiving


Family Caregiver Alliance
The first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Programs are offered at national, state and local levels to support and sustain caregivers.

Caregiver Action Network (fka National Family Caregivers Association)
The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the than 65 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age


So now what….Caring for someone with PD

APDA Family and PD

APDA Keys to Caregiving

APDA Maintaining Independence in PD

PDF Caring for the Care Partner

PDF Coping w dementia advice for caregivers

PDF PD partnership

Info for Children

Books for Children

The Tale of a Parkie Princess

My Grandpa has Parkinson’s

I’ll Hold Your Hand So You Won’t Fall:  A Child’s Guide to Parkinson’s disease

Who is Pee Dee?  Explaining Parkinson’s Disease to a Child


Helping your children cope with your PD